What a weekend! We have had a lot going on that we wanted to share with all of you. I was originally going to blog about both the wedding weekend and Ryan’s birthday yesterday, but there is just too much to say about the wedding. I will blog about Ryan’s birthday later this week.
Ryan and Grace are good travelers. We have been doing it for a while now, especially when we lived in California and all of the rest of our family lived on the east coast and in Texas. But still, Ryan has autism and with autism comes the repetitive behaviors and stims that he can’t always control. Given this, I would have never dreamed that a passenger would have passed me this note.
I almost fell out of my too tight airplane seat! What a blessing to receive something like this to start our weekend! Of course this was about an hour into the 3.5 hour flight, so I basically held my breath for the remainder of the flight (and the kids did do great!)
The following day, we met up with a mom named Julie that I had met at an autism conference in St. Petersburg, FL (we both lived there at the time) almost 5 years ago. She and I have kept in touch through Facebook all this time and we got to see her last weekend at the Autism Education Summit. She recently moved to Cape Cod over the summer and she picked us up and took us to her favorite gluten free restaurant and bakery and Ryan, Julie, and I had a very relaxed and delicious lunch! Ryan spelled out I REALLY LIKE JULIE as we were enjoying each other’s company. It was so nice to spend the afternoon with someone who “gets it” and she was an excellent hostess!
Next up was the rehearsal and dinner. This was Ryan’s first chance to shine with all of our family members. He was amazing. He conversed with many different people in a very loud restaurant setting. He often had to take breaks because he was having so much difficulty with the noise, but it did not discourage him. He used his noise canceling headphones some of the time and took walks with various family members and spent some time in a quieter area of the restaurant. Randy was flying in from Chicago as he had a work conference that he needed to attend. We met up with him at the after party at the hotel lounge. Ryan continued to spend time with family and he seemed happy. We got back to our room that night and he was having a lot of difficulty settling down. I asked him what was going on.
SO I AM HAVING TROUBLE TRYING TO SLEEP BECAUSE I AM SO EXCITED ABOUT MY NIGHT TONIGHT.
He was proud of himself and so were we.
The next day was the wedding. He couldn’t contain his excitement either.
SO MOM I AM READY TO GO TO THE WEDDING.
“Ryan we still have to wait a bit longer as the ceremony is in an hour.”
It was a Catholic Mass and Ryan was on his best behavior. About 40 minutes in, he spelled: NEED TO LEAVE NOW. Randy took him out for a walk. Again, the significance of this is great as he lasted that long and was quiet for the ceremony and was able to calmly ask to leave.
Now time for the party. Well, he did great again. He conversed with people within our family, friends, and some people whom he had never met but had read his blog. He answered questions. It was loud. He still did it.
He was very affectionate with family, often giving many spontaneous kisses throughout the night.
And he danced.
And danced some more.
And on top of all of this, there was this incredibly, unbelievably kind gesture by the bride and groom.
How can you not be moved to tears by a gesture like this? I have dreamed of the day of Ryan being able to communicate with our family. Many, many dreams of this. At one point, I hesitate to share that I was not sure if this would ever become a reality. Well, Ryan has exceeded my expectations and then some. I think that he blew people away. He was not only able to communicate, but he was able to communicate so maturely. He was told that he is “so smart” and “funny” and “amazing.” He was spelling so fast that it was hard for everyone to keep up (including me at times!). I can honestly say that this weekend was one of the best of my entire life.
We got back home and Ryan was not feeling his best on Monday morning. His stomach was bothering him. As a very pushy, excited mother, of course I wanted to hear all about what he thought of the wedding. He was barely able to spell during the lessons due to his stomach issues, so I backed off.
Later that night, I picked Ryan up and told him how much fun I had at the wedding and that I was so proud of him. After I put him down, he started to get very sad. I asked him what was going on.
STRONG MOM, I HAD THE TIME OF MY LIFE AT THE WEDDING.
“Ryan, there will be more weddings. You have another aunt, two uncles, and many cousins who will get married.”
KIND OF LOVE WEDDINGS.
The beautiful Bride and Groom exiting the party!
8 thoughts on “The Wedding”
I had SO much fun getting to know Ryan!! Please tell him I say hi! 🙂
Wow, I really enjoyed reading all about this amazing weekend! Ryan, you and I are kindred spirits. I kind of love weddings, too. 🙂 And like Ryan, I’m not always feeling my best after fun times like that either. As much as I enjoy the events and the people, once it’s over I feel like I’ve been run over by a truck! I’m tired and sometimes sick and I just need to sleep for a few days. I look forward to hearing about your birthday next!
Wow amazing and very inspiring.Tears rolling.
My sister and her wife were completely blown away by the both of you at the reception. They marveled at how bright your son is, and how determined you are to support him. It was lovely to meet your family, and we are so pleased to have David as a part of ours.
Hi Stephanie and Ryan,
I’ve commented before, but can’t help myself from commenting again! Ryan, I am an old friend of your Aunt Samantha’s and I work with children who have autism each and every day. Your blog is absolutely amazing, inspiring and I find myself giving out the link to it very often. The one comment I always receive from parents I tell your story about is, “I hear RPM is subjective. I would need to see it myself to believe it truly works.” So my question to you both is, would you be willing to share a video of Ryan utilizing his letter board to communicate? This would be so very helpful to the families who are wanting to try RPM but are apprehensive. I love your blog, and think both of you are so smart, witty and amazing people. Keep it up! You are inspiring people all over the country… and probably the world!
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Hi, Samantha! Yes, our plan is to do that. At our behind the scenes tour, I believe the person showing us around actually taped some of the conversations between Ryan and the employees there. If not, I’ll try to get one up on the next post. Thanks again for sharing and for reading the blog !